For info about vaccinations and all kinds of medical issues check this article out:
http://www.regardingcaroline.com/pubmed
Showing posts with label allergies. Show all posts
Showing posts with label allergies. Show all posts
Monday, July 9, 2012
Monday, June 11, 2012
I HATE MENUS!!!
I hate menus!! Literally hate them!
Let me start over- Every summer my boys go to a camp--Which means that I have to go over the menu since J has a gluten and carrot allergy. Do you realize how much stuff is hidden in menus? And it isn’t like I get the same cook every year. Some “cooks” are not really cooks, rather just hired help to cook the food, and they have no clue about allergies. Of course even if there is a “real” cook there that doesn’t mean anything. Last year the “real” cook, who actually knew what gluten was, got fired in the middle of the week because evidently she went crazy-literally. I was told she barricaded herself in the dining building and thought people were coming for her. They think she went off her meds- which isn’t comforting since my kids were there!!
But anyways back to menus. So I am reviewing the menu for this year…and it is full of pre-packed foods- which means more possibility for it to contain wheat/barley! I know it is easier for the cooks to prepare but come-on! The closest they come to home-made meals is a salad-bar…And that probably contains the packaged mixes of lettuce and whatever. They don't even have spaghetti on the menu this year.
I am just hoping that the “cook” I am emailing knows what he is doing. At least I will be at the camp for part of the week to make sure J gets what he is suppose to (and doesn't get what he isn't suppose to).
Let me start over- Every summer my boys go to a camp--Which means that I have to go over the menu since J has a gluten and carrot allergy. Do you realize how much stuff is hidden in menus? And it isn’t like I get the same cook every year. Some “cooks” are not really cooks, rather just hired help to cook the food, and they have no clue about allergies. Of course even if there is a “real” cook there that doesn’t mean anything. Last year the “real” cook, who actually knew what gluten was, got fired in the middle of the week because evidently she went crazy-literally. I was told she barricaded herself in the dining building and thought people were coming for her. They think she went off her meds- which isn’t comforting since my kids were there!!
But anyways back to menus. So I am reviewing the menu for this year…and it is full of pre-packed foods- which means more possibility for it to contain wheat/barley! I know it is easier for the cooks to prepare but come-on! The closest they come to home-made meals is a salad-bar…And that probably contains the packaged mixes of lettuce and whatever. They don't even have spaghetti on the menu this year.
I am just hoping that the “cook” I am emailing knows what he is doing. At least I will be at the camp for part of the week to make sure J gets what he is suppose to (and doesn't get what he isn't suppose to).
Labels:
allergies,
celiac disease,
cooks,
Diet,
food,
gluten,
Gluten-free,
menus,
Raw Carrot Allergy
Friday, June 8, 2012
Really people?!?! Excluding kids based on food allergies.
J is gluten-free due to his reaction to gluten. He does not have celiac but is "sensitive" to gluten. This week I was confronted with a comment that made me very mad. I had asked about the possibility of an organization we are deeply involved in of purchasing a gluten-free (g-f) pizza. The place they were buying pizza from offers g-f pizzas for the same price as non-g-f so I didn't see it as a big deal to ask. The response was: "I do not want to start catering to all dietary needs, that could lead into a big ordeal.". Whether she intended it to or not, her response rubbed me wrong. My son does NOT have a "dietary need" - he has a food allergy!! To me, "dietary need" is not the same as allergy. And if we had an child with a more severe reaction they would HAVE to "cater to their "dietary need".
I responded and included the following: "I understand your position. However, I disagree. J is a member of this organization and it is medically necessary that he does not eat anything with gluten. It is absolutely possible for ANYONE to eat a gluten free pizza but it is impossible for J to consume non-gluten free pizza. To exclude him is unfair and directly telling him that he didn’t matter. He has gotten upset every time the organization has had a food event in which he can’t participate. I apologize- it was not my intent for my request to escalate as much as it seems to. Again I thought it would not be an issue, given where the organization was ordering from and the cost being the same."
I decided to look up the laws for people with food allergies. Here is what I learned:
"At a recent food allergy roundtable in New York City, Mary Jane Marchisotto, Executive Director of the Food Allergy Initiative (FAI) shared the most recent statistics on food allergies, saying that, “Every classroom now has two students with food allergies.” A July 2011 study funded by FAI and published in Pediatrics, found that 15 million Americans and one in every thirteen children now suffer from food allergies – a significant increase from prior data." http://www.forbes.com/sites/work-in-progress/2012/04/27/virginia-enacts-stock-epinephrine-law-to-help-protect-students-with-allergies/
"A food allergy may be considered a disability under federal laws such as Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Act (ADA)." http://www.foodallergy.org/section/disability
I also called my son's specialist. I never asked for a letter stating his sensitivity to gluten because I didn't think I would need it since we homeschool. I am now requesting that letter.
In the end the organization won't provide g-f pizza for J. While I still think they are being unreasonable, considering there is no added cost or effort on their part, I am fine with it. I will once again provide my son with food, while trying to explain to him that having a food allergy is not an exclusion from participation and that other kids don't think he is weird for not eating "normal" food.. :-(
UPDATE: So we went to our event with our g-f bought pizza. And one of the members of the organization had gone out of his way and purchased gf pretzels and cookies for J. He also gave us money for the gf pizza, saying that we shouldn't have to pay for our own food when it was a organization event. I am not sure if he purchased the items out of his own pocket or if the organization paid for them. I appreciate what he did because it made me feel like someone was on my side. At the same time if it is out of his own pocket it makes me feel bad. He shouldn't have to pay it himself either- it's not his kid. But again I really appreciate it. He even went out of his way to talk to J and show him where the stuff was. He really is a sweetie! :-)
I responded and included the following: "I understand your position. However, I disagree. J is a member of this organization and it is medically necessary that he does not eat anything with gluten. It is absolutely possible for ANYONE to eat a gluten free pizza but it is impossible for J to consume non-gluten free pizza. To exclude him is unfair and directly telling him that he didn’t matter. He has gotten upset every time the organization has had a food event in which he can’t participate. I apologize- it was not my intent for my request to escalate as much as it seems to. Again I thought it would not be an issue, given where the organization was ordering from and the cost being the same."
I decided to look up the laws for people with food allergies. Here is what I learned:
"At a recent food allergy roundtable in New York City, Mary Jane Marchisotto, Executive Director of the Food Allergy Initiative (FAI) shared the most recent statistics on food allergies, saying that, “Every classroom now has two students with food allergies.” A July 2011 study funded by FAI and published in Pediatrics, found that 15 million Americans and one in every thirteen children now suffer from food allergies – a significant increase from prior data." http://www.forbes.com/sites/work-in-progress/2012/04/27/virginia-enacts-stock-epinephrine-law-to-help-protect-students-with-allergies/
"A food allergy may be considered a disability under federal laws such as Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Act (ADA)." http://www.foodallergy.org/section/disability
I also called my son's specialist. I never asked for a letter stating his sensitivity to gluten because I didn't think I would need it since we homeschool. I am now requesting that letter.
In the end the organization won't provide g-f pizza for J. While I still think they are being unreasonable, considering there is no added cost or effort on their part, I am fine with it. I will once again provide my son with food, while trying to explain to him that having a food allergy is not an exclusion from participation and that other kids don't think he is weird for not eating "normal" food.. :-(
UPDATE: So we went to our event with our g-f bought pizza. And one of the members of the organization had gone out of his way and purchased gf pretzels and cookies for J. He also gave us money for the gf pizza, saying that we shouldn't have to pay for our own food when it was a organization event. I am not sure if he purchased the items out of his own pocket or if the organization paid for them. I appreciate what he did because it made me feel like someone was on my side. At the same time if it is out of his own pocket it makes me feel bad. He shouldn't have to pay it himself either- it's not his kid. But again I really appreciate it. He even went out of his way to talk to J and show him where the stuff was. He really is a sweetie! :-)
Labels:
allergies,
Boys,
bullying,
celiac disease,
Diet,
Federal Investigation,
food,
gluten,
Gluten-free,
Homeschool
Friday, February 24, 2012
Who doesn't like a good party?!?
The local school superintendent recently announced a change in the public school food policy. Well, it blew up- literally. The local schools (mainly elementary) took the policy and rewrote it or miss-communicated it to their students/parents. It became this HUGE deal - when in reality it isn’t that big of a deal.
The actual policy says
1. Teachers can’t use food/candy as a prize. So when the kid answers the question right they don’t get m&ms or skittles… (Who doesn't like m&ms now and then?!?! :-) )
& 2. The school employees can’t bring in food to feed to the students.
But what came from the above policy was “the classes can’t have parties anymore”.
Nowhere in the policy does it say that!! And this is not a new policy- this policy went into effect in 2005 when my middle son was in 2nd grade. (I remember it because the same “we can’t have parties” was going around.) The school employees are going wild with the no party thing. "Oh we can't have a valentine's day party". Aside from the fact that the policy doesn't say you can't have food or a party---Since when does the word "party" mean "food"? When we were kids a valentine's party was exchanging of cards and maybe a little extra snack. ONE snack- not every kid bringing in a bag of candy or a dessert and sharing it with the other kids…so the kids leave a sugared up mess.
The policy is a good policy! Why do you want the kids sugared up on candy just for answering a question? And what about the kids with food allergies or diabetes? This policy doesn’t hurt anyone and it protects so many. Obviously this policy doesn’t affect my kids now since we homeschool …but what if something happens and I have to put them back in public school? My middle son reacts to red dye and gluten…which are in most candies and easy snack items. If he ever did have to return to public school he would have to have a medical IEP (Individual Education Plan) for his food allergies.
At the end of the day this food policy goes a long way in keeping my child, and many others, safe in a public school environment.
The actual policy says
1. Teachers can’t use food/candy as a prize. So when the kid answers the question right they don’t get m&ms or skittles… (Who doesn't like m&ms now and then?!?! :-) )
& 2. The school employees can’t bring in food to feed to the students.
But what came from the above policy was “the classes can’t have parties anymore”.
Nowhere in the policy does it say that!! And this is not a new policy- this policy went into effect in 2005 when my middle son was in 2nd grade. (I remember it because the same “we can’t have parties” was going around.) The school employees are going wild with the no party thing. "Oh we can't have a valentine's day party". Aside from the fact that the policy doesn't say you can't have food or a party---Since when does the word "party" mean "food"? When we were kids a valentine's party was exchanging of cards and maybe a little extra snack. ONE snack- not every kid bringing in a bag of candy or a dessert and sharing it with the other kids…so the kids leave a sugared up mess.
The policy is a good policy! Why do you want the kids sugared up on candy just for answering a question? And what about the kids with food allergies or diabetes? This policy doesn’t hurt anyone and it protects so many. Obviously this policy doesn’t affect my kids now since we homeschool …but what if something happens and I have to put them back in public school? My middle son reacts to red dye and gluten…which are in most candies and easy snack items. If he ever did have to return to public school he would have to have a medical IEP (Individual Education Plan) for his food allergies.
At the end of the day this food policy goes a long way in keeping my child, and many others, safe in a public school environment.
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